Page updated on July 19th, 2016


Thursday 11 December



  • The EUPHORIC project (PDF)
    Marina Torre – ISS, Rome, Italy
    Main aspects of the Euphoric project: participating institutes and countries, public health at EU level, research objectives, work organization and planning, affinity with the ECHI project ((European Community Health Indicators).

Session 1 – Indicators

  • EUPHORIC: indicators selection and sheets preparation (PDF)
    Stefano Rosato – ISS, Rome, Italy
    This presentation illustrates the steps taken during the survey phase. More precisely, the outcome indicators selection process that helped identify the nine pathology areas of common interest and the drawing up of a final list of outcome indicators with a related brief description.

  • Perfect project (PDF)
    Unto Häkkinen - STAKES, Helsinki, Finland
    Characteristics, results and practical effects of the Finnish project PERFECT (PERFormance, Effectiveness and Cost of Treatment Episodes). The PERFECT project aims to develop methods for register-based measurement of the cost-effectiveness of treatment and to create a comparative database that allows the treatments given and their costs and effectiveness to be compared between hospitals, hospital districts, regions and population groups.

  • The EUPHORIC Project. The Greek contribution (PDF)
    Antonia Trichopoulou - NKUA, Athens, Greece
    The contribution provided by the EPIC project ((European Prospective Investigation into Cancer and Nutrition) to Euphoric. The EPIC project, with the participation of 23 centres from 10 European countries, involves about 520,000 European citizens. It was designed to investigate the relationships between diet, nutritional status, lifestyle and environmental factors and the incidence of cancer and other chronic diseases.

  • Swedish Health Registers (PDF)
    Weimin Ye – Karolinska Institutet, Stockholm, Sweden
    The first part gives an overview of the Swedish health registers (nationwide registers) and registers that survey the quality of health assistance (National Healthcare Quality Registers). The second part describes the organization of Simsam (Swedish Initiative for Research on Microdata in Social and Medical Sciences), the federated database system which was created by connecting pre-existing Scb (Statistics Sweden) databases, Nbhw (National Board of Health and Welfare) and numerous research laboratories.

  • Characterization of registers by using a category system (PDF)
    Stefan Mathis - LBI HTA, Vienna, Austria
    Can a register be included in a systematic review? After having shown the positive and negative aspects of this option, a description is given of the method to develop a characterizing scheme of the registers which make up the 9 characteristics and subdivided in three areas: context, design, result/outcome and dissemination. Every characteristic is described in detail and explained by answering one or two questions.

Session 2 – Cardiovascular pilot

  • The cardiovascular pilot (PDF) The cardiovascular pilot
    Jaume Marrugat - IMAS-IMIM, Barcelona, Spain
    After a brief introduction on the aims and initiatives for the diffusion of the cardiovascular pilot’s results is a detailed explanation in point form of its seven activities. At the end, the basic principles of the benchmarking system are laid out and the choice of methodologies used is explained. In conclusion, some of the results obtained are shown using comparative analysis (benchmarking) in the cardiovascular pilot.

  • How do the proposed benchmarking models work? (PDF) How do the proposed benchmarking models work?
    Isaac Subirana - IMAS-IMIM, Barcelona, Spain
    Advantages, formula, performance and practical use of a benchmarking model devised to predict the risk of hospital mortality of a certain type of patient, but whose aim is to predict the mortality rate in a certain type of hospital. The initial idea is that an approximation of the mortality rate of a hospital can be obtained by calculating the risk of mortality of an average patient in that hospital.

  • What data have we used to fit the models, and under what assumptions? (PDF) What data have we used to fit the models, and under what assumptions?
    Joan Vila - IMAS-IMIM, Barcelona, Spain
    Data sources used to adapt and develop the benchmarking model on hospital deaths: 5 research studies, 31 countries, 260 hospitals, and more than 26,000 patients. Graphics and tables provide data on: number of patients per country, development indicators, types of hospitals, outcome indicators and patient characteristics.

  • The beta-version of the benchmarking models in action (PDF) The beta-version of the benchmarking models in action
    Andrea Paladin - CASPUR, Rome, Italy
    The first part is dedicated to a brief presentation of the activity undertaken by Caspur and the technical decisions made to develop the Euphoric website, especially in regard to the two distinct access areas (private and public). In the second part, a description of the use of the coronary heart disease outcome benchmarking algorithm and a clarification of its implementation in the “indicators” section of the website are given.

  • Why is it so important to follow clinical guidelines and benchmark European hospitals for coronary heart disease management? (PDF) Why is it so important to follow clinical guidelines and benchmark European hospitals for coronary heart disease management?
    Shlomo Behar - ISPHA, Tel Hashomer, Israel
    Even though considerable differences still exist among European countries, research conducted by ACSIS (Acute Coronary Syndrome Israeli Survey) and Euro Heart Survey ACS prove that “national surveys and registries play a major role in the assessment and improvement of quality of care by checking and comparing adherence to management Guidelines” and that “benchmarking hospitals for coronary heart disease management and outcome is of utmost importance”.

Session 3 - Orthopaedic pilot

  • Orthopaedic Pilot WP 5.2 (PDF)
    Gerold Labek – EFORT-EAR, Innsbruck, Austria
    Organization of the arthroplasty registers, the differences between the Swedish and the Finnish models, the results of the comparative evaluation of 13 prostheses and 2 arthroplasty procedures. These are only a few of the items present in the detailed description of both the results of the work packages 5.2.1-5.2.6 and the suitability of hospital discharge records to measure outcome. The presentation concludes with a series of proposals and possible future developments.

  • Organization of a Spanish arthroplasty register. A Delphi study (PDF)
    Vicky Serra - CAHTA, Barcelona, Spain
    A study to finalize a consensus document concerning its format, function and the items that will set the basis for creating the first national arthroplasty register in Spain. A Delphi Survey is a series of questionnaires that allow experts to develop ideas about potential future developments. The methods, characteristics and results of the Spanish research are illustrated in the presentation.

Session 4 - Risk adjustment

  • Definition of extended protocols for comparative evaluation of outcomes. A public health point of view (PDF)
    Anna Patrizia Barone - DEASL, Rome, Italy
    Based on the experiences gained from the Euphoric and Mattoni projects and the IN-ACS Outcome study, the Lazio Regional Authority in Italy modified information obtained from data taken from hospital discharge records of acute patients. The new flow of information, called RAD-ESITO, promotes quality in codifying diagnoses and procedures and makes important additional information available to the regional programme to use as a support in evaluating the effectiveness of a treatment and of the comparative outcome assessment of hospitals and populations.

  • Application of extended protocols on specific data samples: an Italian experience (PDF)
    Danilo Fusco - DEASL, Rome, Italy
    An Italian experience of the Lazio Regional Authority: comparison of the predictive capacity of models obtained using only the information available from the Hospital Information System or the clinical information collected through the HIS+RAD-ESITO database. The analyses of 30-day acute myocardial infarction mortality, for STEMI (ST elevation myocardial infarction) or non-STEMI (non-ST elevation myocardial infarction), and surgery within 48 hours of admission for a fractured hip are reported as an example.

  • Statistical procedures for identification and definition of risk for comparative evaluation of the outcomes (PDF)
    Danilo Fusco - DEASL, Rome, Italy
    In health care studies, the results can be influenced by the patient’s allocation to a treatment rather than another. Confounding is typical of observational studies and can affect their internal validity. The presentation illustrates the three strategies (risk adjustment, propensity adjustment, change-in-estimate) which can identify and check the confounding in observational studies.


Friday 12 December


Session 1 - Liaisons with other projects

  • Health Care Quality Indicators Project (PDF)
    Sandra Garcia Armesto - OECD, Paris, France
    The Health Care Quality Indicators Project (HCQI) responds to the growing interest by healthcare policy makers and researchers in OECD countries in measuring and reporting the quality of medical care. The focus of the HCQI project is to develop national-level indicators for the technical quality of medical care provided. The aim is to collect internationally comparable data reflecting the health outcomes and health improvements attributable to medical care delivered in OECD countries.

  • EU health monitoring and interaction between projects developing indicators and data sources (PDF)
    Arpo Aromaa – National Public Health Institute, Helsinki, Finland
    The ECHI (European Community Health Indicators) project was carried out within the framework of the Health Monitoring Programme and the Community Public Health Programme 2003-2008. The result is a comprehensive list of indicators (the "long list") for the field of public health, arranged according to a conceptual view on health and health determinants. In addition, as part of the second phase of the ECHI project, the ICHI-2 database (International Compendium of Health Indicators) was developed. The work has continued in the ECHIM project (European Community Indicators and Monitoring), coordinated by the Finnish Public Health Institute.

Session 2 - Dissemination

  • EUPHORIC Dissemination (PDF)
    Eva Benelli - ZADIG, Rome, Italy
    Which activities involve disseminating the results of the Euphoric project? In this presentation, the aims and the urgency in disseminating the results in the scientific sector and the numerous work tools that outline the results of the Euphoric project: the website; the newsletter which communicates the website updates; the leaflet, which lays out the main aims and possible future developments of the project; the video, aimed at decision makers, patients and the public; the final report and the executive summary; the virtual table, to discuss how to share the outcome indicators with health workers and the public; and the press kit.